Saturday, December 19, 2009

A reality show I'd love to escape from ... but only if I can take Dorian with me ... .

We're still far from answers, and the grim reality is beginning to penetrate the recesses of Dorian's mind -- fears I believed she would be spared by her limited mental capacity. Not so. The words we're now dealing with are frightening to us both. I'm facing questions like "am I paralyzed, Mom?" And for the first time in this morning's wake up phone call at around seven, "the toes on my left foot are numb, Mom, and my foot is swollen -- will it be amputated?" The grim reality is beginning to set in, and I'm just not ready.

She has always had an unexpectedly varied vocabulary, and, given the nature of her brain damage, occasional signs of intelligence beyond her apparent intellectual capacity. These little bursts of "normalcy" have always been the source of pleasure for me, and enabled us to talk about abstractions in ways that demand complete honesty from me in order to continue to provide a dependable and logical base upon which she can grow. It has worked so far. We've maintained a close and loving relationship despite the difficulties we've encountered along the way in working in an often unsympathetic and unknowing professional medical/mental system.

I'm blogging now wearing blinders of a kind required in order to keep us out of an adversarial situation with others. I've retained an attorney since there are considerations beyond my capacity to deal. I'm calling in all of the markers possible, and my community of friends and neighbors and co-workers and associates are responding rigorously, and with the kinds of help needed in order for me to wade through all that must be lived out in the short term.

The police report is now ready but not yet released. We have a second follow-up appointment at the hospital on Monday morning. We'll be transported by ambulance, and I'll then know a bit more about her prognosis.

Her Kaiser Permanente coverage has been reinstated and will be re-activated on January 1st. It had been allowed to lapse as of August 1st by those responsible for the daily supervision of those who share life together in her group home; just one of the many glitches we've encountered since the accident. She's being covered as a handicapped person under Medical/Medicare -- and you can guess that I've been more than casually caught up in the Senate debates over the past week. Watching the idiocy played out on CSPAN day after day added to the nightmare that we're currently living. It is almost surreal.

Now I'm off to the nursing home to try to raise Dori's spirits a bit; just enough to get us to Monday morning's appointment at ten o'clock. I'll pick up a tiny Christmas tree along the way. Maybe that will buy us a few hours of joy and peace on earth, the moon, Venus or Mars, and most of all -- Vintage Estates Nursing Home, Richmond, California.

Now I'm off to see the Christmas Tree Wizard!

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